Celine Dion's battle with Stiff Person Syndrome, a rare neurological disorder, has gotten worse. The singer “has no control over her muscles,” said her sister Claudette Dion in an interview with 7 Jours. Celine, known for evergreen hits like “I'm Alive,” “My Heart Will Go On” and “Because You Loved Me,” spoke openly about her diagnosis a year ago. She was recently seen in the film Love Again with Priyanka Chopra.
Celine Dion during one of her stage appearances in 2019. (AFP)Speaking about her condition, Claudette said: “What breaks my heart is that she was always disciplined. She always worked hard. Our mother always told her, 'You'll do well, you'll do right.' '” Expressing Céline's desire to return to the stage, she continued: “It is true that in both our dreams and theirs the goal is to return to the stage. In what capacity? I don't know. “
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Last December, Céline canceled a number of shows due to health problems. In a video message to her fans on Instagram, she said: “I was recently diagnosed with a very rare neurological disorder called 'stiff person syndrome', which affects around one in a million people.” She said the condition ” affects every aspect of my daily life, sometimes causing me difficulty walking and not being able to use my vocal cords the way I used to.”
The singer claimed that she has the support of her children and a medical team every day, “but I have to admit that I am struggling.” She burst into tears and said: “All I know is singing, it’s what I’ve done all my life and it’s what I love to do. I miss seeing you all, being on stage and performing for you.” “
Stiff person syndrome is a rare autoimmune movement disorder that affects the central nervous system. It is also called SPS or Moersch-Woltman syndrome. It causes chronic pain and spasms that are usually triggered by noise, emotional stress, and light physical touch. The person may experience stiffening of the muscles in the trunk and abdomen, as well as stiffness in the legs and other muscles of the body.
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