The sister of Céline Dion, the legendary Canadian singer, has revealed new details about the neurological disorder that affects her, known as Stiff Person Syndrome (SPS, in English). In an interview with 7 Jours, Claudette Dion said that her sister “works hard but no longer has control of her muscles.”
Dion had already canceled all dates of her tour until next year at the beginning of 2023, due to this condition that, despite its effects, does not dampen hope: “In our dreams and yours, the goal remains that we are back on stage,” Claudette added.
The sister of the artist, who sang the emblematic song “My Heart Will Go On” on the soundtrack of the film “Titanic” in the late 90s, explained that it was already difficult for Céline to be able to sing because the vocal cords are also muscles . However, there are many on social networks questioned his statements and they find it difficult to believe that the progress was so sudden.
“It's a case in a million. Scientists didn’t do as much research because it didn’t affect as many people,” Claudette explained.
After the news, the family charity Fondation Maman Dion did not stop receiving thousands of messages in support of the singer, Claudette said. “People tell us they love her and are praying for her.”
[Investigan una rara enfermedad que está afectando a perros y puede ser mortal]
Celine Dion, who suffered from uncontrollable and painful muscle spasms, announced her diagnosis in December 2022 and canceled the dates of her European tour for February of that year, although she eventually canceled it entirely in May.
Claudette qualified in another interview with Hello! magazine. to his sister like “A strong woman who does everything to get well again”while the family hopes doctors will “find a solution to this terrible disease for which there is no cure.”
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“There is little we can do to support her and ease her pain,” Claudette explained, referring to the severe cramps her sister suffered.
The Las Vegas-based singer has stayed out of the public eye since announcing the cancellation of her tour.
What is Stiff Person Syndrome?
According to the US National Institute of Neurological Disorders and Stroke, this rare disease, which affects one in a million people, is a rare and progressive neurological disorder that causes muscle stiffness in the trunk, legs and spine Hull leads.
The organization assures that it also causes patients to have “greater sensitivity to stimuli such as noise, touch and emotional stress, which can trigger muscle spasms,” resulting in “abnormal postures, often hunched and rigid.”
The syndrome leaves sufferers “may be unable to walk or move, or afraid to leave the house” due to the noise present.
SPS affects twice as many women as men and “scientists still don’t understand what causes it,” although research claims it is “an autoimmune reaction that twists in the brain and spinal cord.”