Exactly a year ago, with a social video message, Celine Dion updated fans on her most difficult fight. The diagnosis of “Stiff Person Syndrome”, a rare neurological disorder that affects one in a million people and causes progressive muscle stiffness and disabling spasms. “The cramps prevent me from using my vocal cords to sing as I am used to,” she explained as she announced the stop of the Courage tour and the postponement of the concerts to spring 2024. How are you doing? Today Celine Dion? Sister Claudette updated fans on her health.
Celine Dion in New York in 2020
Gotham//Getty Images
How is Celine Dion today?
Claudette Dion spoke about Céline's battle with rare central nervous system neuropathy, which was diagnosed last year, in an interview with Canadian newspaper 7 Jours. “He lost control of his muscles”, he admitted and then confessed the Queen of Power Ballads' strong desire to return to perform and delight their fans around the world. “Of course in our dreams and in his dreams there is the idea of returning to the stage. In what condition? I don't know it. The vocal cords are muscles and the heart is also a muscle.”
There Stiff Person Syndrome (from the English Stiff Person Syndrome, SPS) is a rare and little-known disease. For this reason, the Maman Dion Foundation is engaged in researching remedies or treatments that can cure or at least alleviate the disease. “If you only knew how many calls the Céline Foundation receives, people tell us that they love her and are praying for her,” said her sister, “She receives many messages, gifts and blessed crucifixes.”
“What hurts me is that she was always disciplined. She always worked hard,” he continued, recalling the willpower and drive of one of the most popular and talented singers in the music system. At his side in this fight are his sister Linda and the three children René-Charles, 22 years old, and the twins Eddy and Nelson, 13, arose from her marriage to manager René Angélil, who died of throat cancer in 2016 at the age of 74. Just last month, the 55-year-old made her first public appearance in over three years when she attended a hockey game in Las Vegas.
“These cramps are affecting every aspect of my life. Sometimes they cause difficulty walking and do not allow me to use my vocal cords to sing as I am used to,” she explained in the video in which she informed fans about the pathology “I have a great team of doctors working with me , to help me get better, and my precious children to support me and give me hope. “I'm working hard every day with my sports medicine therapist to regain my strength and performance.” “But I have to admit it's a struggle.”
A difficult moment that did not discourage some of the haters and did not prevent the emergence of fake news (in August, the news of his death began to circulate on social media, editor's note). “Why do you say that Celine is in a wheelchair? Why do you say he has cancer? Why are you making up stories?” said Claudette Dion, “my sister is mentally strong, she is not depressed and has not lost her love for life.”
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